The Scottish Mental Illness Stigma Survey

We want to speak to people who have experienced mental health stigma and discrimination to create real change in Scotland.

The Scottish Mental Illness Stigma Survey

General recruitment for the Scottish Mental Illness Stigma Survey has now closed, but we are still looking to speak with people from specific geographic areas and community groups in more detail. See below to find out if you can take part.

The Mental Health Foundation, See Me and Glasgow Caledonian University are undertaking a ground-breaking research project to better understand how people living with severe, complex and/or enduring mental illnesses experience stigma and discrimination.

Further recruitment

The first stage of the Scottish Mental Stigma Illness Survey involved responding our survey.

We’ve now entered a second stage, where we are looking to speak to people in a bit more detail, to hear about their experiences and get a better understanding of the data we’ve already collected.

Our research partners will be conducting in-person and virtual focus groups throughout the summer months with people from a range of demographics and population groups.

For this, we’re looking to speak to people who meet the criteria outlined below, as well as:

  • People from West Lothian or West Dunbartonshire
  • Men
  • People from black, Asian and minority ethnic communities
  • People over the age of 65

If you fit into any of these categories, and have experience of mental illness as outlined below, we’d love to hear from you.

If you would like to participate, you will be asked to read important information about the study, give your consent to take part and fill in a short screening form. You will then be invited to have a discussion with a researcher – either online, in person, or over the phone, or in a small group discussion

Participants will be offered a £15 voucher as reimbursement for taking the time to participate in the study.

To find out more, email katie@thelinesbetween.co.uk from The Lines Between,  or jfinlay@mentalhealth.org.uk at the Mental Health Foundation.

What is the Scottish Mental Illness Stigma Survey?

The Scottish Mental Illness Stigma Survey is a first-of-its-kind piece of research for Scotland, which will look to address some of the most pervasive and severe stigma and discrimination that people in Scotland with mental health illnesses face.

We want to speak to people who have experienced longer term, enduring mental illnesses which have seriously impacted on their lives to find out:

  • What stigma and discrimination people have experienced and how often
  • Where in their lives people have experienced it and to what extent
  • What impact these experiences have had on their lives and behaviours
  • How people experience self-stigma
  • What needs to change to improve the lives of people experiencing complex mental illnesses

This conversation is part of wider work happening in the See Us movement, which invited people across Scotland to get involved in the movement to end mental health stigma and discrimination.

Find out more about the survey from Glasgow Caledonian University's Professor Simon Hunter on the GCU Common Good podcast.

Glasgow Caledonian University · The Scottish Mental Illness Stigma Survey with Professor Simon Hunter

Who can take part?

We are looking to speak with people aged 18 and over, based in Scotland, who, within the last year, have experienced a severe, complex and/or enduring mental health illness, or illnesses, including:

  • Schizophrenia or other primary psychotic disorder
  • Bipolar or related disorder
  • Obsessive-compulsive or related disorder
  • Disorder specifically associated with stress (e.g. post traumatic stress disorder)
  • Dissociative disorder
  • Feeding or eating disorder
  • Personality disorder
  • Severe and/or treatment-resistant depressive disorder
  • Severe and/or treatment-resistant anxiety or fear-related disorder

We are inviting both people who have received a formal diagnosis, as well as those who have not been diagnosed formally but believe they may be experiencing one or more of these mental illnesses, to participate.

The study team at the Mental Health Foundation and Glasgow Caledonian University requests that the Scottish Mental Health Stigma Survey is not promoted directly to NHS services or patients, or by supporting recruitment through an NHS role (e.g., sharing the survey using an NHS email or via a role you undertake during NHS employment hours). Doing so would breach the ethical parameters within which the research is being carried out. The study team is not responsible for the survey being shared unknowingly in these ways.

Join See Us

Anyone can help tackle stigma and discrimination. You can do as little or as much as you're able to and every action makes a difference.

See Us Movement